Policy/Government News

NORD’s first ever State Progress Report serves as an initial evaluation of state progress in implementing policies pertinent to the rare disease community.

11/10/2015 2 Comments Contact Our News Editors

News Topic: 

http://rarediseases.org/advocate/take-action-locally/stateprogressreport/

Rare Disease of Interest: 
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JaFlomagee24's pictureJaFlomagee24Friend or Family Member Diagnosed: Jul, 2015
Disease: Cryopyrin-Associated Periodic Syndromes
Joined: Jun, 2016
Location: Salt Lake City, UT
Posts: 2

Evebody are hoping that there is good that will come up in the report. Everybody is in high hopes.

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surbhish's pictureorganizationsurbhish
Disease: Crohn's Disease
Joined: Jun, 2016
Location: Hyderabad,
Posts: 1

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