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Sydney Markets Fruit Auction Raises $75,000 for Duchenne Muscular Dystrophy 11/10/2015 1 comment
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Sean Hepburn Ferrer, son of actress Audrey Hepburn, is calling for more awareness of rare diseases in a new PSA with the National Organization for Rare Disorders (NORD). 11/10/2015
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NORD’s first ever State Progress Report serves as an initial evaluation of state progress in implementing policies pertinent to the rare disease community. 11/10/2015 2 comments
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Rare LCHAD Disorder Means Two-Year-Old Must Eat Every Hour 11/09/2015 3 comments
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Centers for Mendelian Genomics Uncovering the Genomic Basis of Hundreds of Rare Conditions 10/27/2015 2 comments
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Undiagnosed Diseases Network launches online application portal 09/16/2015 1 comment
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New Guidelines Announced for Diagnosis, Surveillance and Management of Rare Genetic Disease Called Tuberous Sclerosis Complex Two Peer-Reviewed Papers Featured in October Issue of Pediatric Neurology 10/22/2013
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Infantile Spasms Awareness Week (ISAW) - DECEMBER 6-10, 2013 09/13/2013 2 comments
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2013 International Research Conference on TSC and Related Disorders 09/13/2013
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Congressman Bilirakis discusses FDASIA implementation at Rare Disease Caucus Briefing 09/13/2013
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Shire Launches Report that Quantifies the Health, Psycho-social and Economic Impact of Rare Diseases 09/13/2013 1 comment
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Rare Disease Report: event highlights from World Orphan Drug Congress USA 2013 09/13/2013 5 comments
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FDA accepts Biogen’s application for hemophilia A candidate 05/13/2013
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Neighbor helping neighbor through lymphoma research 12/19/2012
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Girl with crippling bone disease held by TSA agents after testing positive for traces of explosives 12/19/2012
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Photo puts pride into perspective 12/19/2012
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Charlie Knuth's family fights for boy's schooling 12/17/2012
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Tiny dancers Star Steppers raise money for charity in their pajamas 12/17/2012
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Playing hockey with MS diagnosis 12/15/2012
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Baby Easton remains in the hospital with a cold 12/15/2012
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Questcor Teams With Child Neurology Foundation To Continue Funding Infantile Spasms Scientific Research 12/13/2012
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Multiple sclerosis study uses nanoparticles to stop immune system from attacking 12/13/2012
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Scientists Identify Key Biological Mechanism in Multiple Sclerosis 12/13/2012
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New multiple sclerosis medications offer options 12/13/2012
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What color is the sky? Depends on how your brain sees it 12/13/2012
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