Personal Stories (Other)

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Multiple Sclerosis: From symptoms to diagnosis

This is part of my little story of what I did when i was diagnosed with MS on 13th December 2004. It's more of my madness unleashed...

Rare Disease of Interest: 
Multiple Sclerosis
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wheelchair transferring Multiple Sclerosis caregiver

transferring from wheelchair to scooter and wheelchair to bed. Caregiving and living with challenges of Multiple Sclerosis. http://caregivinglyyours.com/ ... spouse caregiver Patrick Leer

Rare Disease of Interest: 
Multiple Sclerosis
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Multiple Sclerosis - Faces of MS

Produced by the Multiple Sclerosis Society of Canada, this video is a general overview of what MS is and how it affects individuals and their families. Information is provided on the services offered by the MS Society, and outlines some of its fundraising events. The video encourages volunteers to join the Society and become involved in its efforts. Contact the MS Society of Canada at www.mssociety.ca or 1-800-268-7582.

Rare Disease of Interest: 
Multiple Sclerosis
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Eli's Story: His 1st 9 months video - Part 1 of 3

Eli's Story: His 1st 9 months, a Tuberous Sclerosis Complex (TSC) diagnoses after appearance of Infantile Spasm seizures and all the while he's a laughing, happy little boy who's loved by many.

Rare Disease of Interest: 
Infantile Spasms
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The Allen Family Story

The Allen family from Arizona knew something was wrong with their infant son, Logan, when his tiny body was gripped by seizures. By quickly getting to a child neurologist, Logans seziures were controlled. Now 4 years old, Logan is developmentally on track with his peers. Watch this inspiring story of Logan.

Rare Disease of Interest: 
Infantile Spasms
Lennox-Gastaut Syndrome
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The Onda Family

More than most families, the Ondas know about the affects of infantile spasms. Ty Onda, now 17, had his seizures stopped as an infant, although he still suffers from the underlying cause of his disease, tuberous sclerosis. Ty, a competitive swimmer and good student, heads to college next year in the hopes of studying biology.

Rare Disease of Interest: 
Infantile Spasms
Lennox-Gastaut Syndrome
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Understanding Infantile Spasms

For new parents, watching a young baby's every movement typically brings much joy. But when a baby exhibits signs and symptoms of a serious neurological condition such as infantile spasms, that joy can quickly turn into concern about the baby's well-being. In this video you will hear from child neurologists who treat children with infantile spasms. And you will hear from families who have experienced this disorder first-hand. We hope their stories and perspectives inspire you and encourage you to seek more information.

Dr. John Bodensteiner,
President of the Child Neurology Society

Rare Disease of Interest: 
Infantile Spasms
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Blind Mountain Climber Inspires Crowd in Coral Gables

Rare Disease of Interest: 
X Linked Retinoschisis
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Pray for Baby Taytem

Photos from the hospital of Taytem in her fight for her life.

Rare Disease of Interest: 
Urea Cycle Disorder
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CT Scan Cancer non-hodgekins lymphoma

CT ABDOMEN WITH CONTRAST- Confirmed cancer non-hodgekins lymphoma.

Indication- Epigastric pain.

History- Breast ca and mastectomy.

Findings- Bilateral breast prostheses are noted. There is no
pericardial or pleural fluid. The lung bases are unremarkable. The
osseous structures demonstrate a scoliosis but no suspicious lytic
or blastic lesions are identified.

Rare Disease of Interest: 
Lymphoma
T-Cell Non-Hodgkins Lymphoma

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