News Segments

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Mac Kids - Raina and Shasta's Story

Sisters battle Cystic Fibrosis with the help of McMaster Children's Hospital.

Category: 
Rare Disease of Interest: 
Cystic Fibrosis
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Six Year Old Joey "Peanut" Benton Describes What It's Like to Live With Cystic Fibrosis

Joey "Peanut" Benton appears on WCBD-TV to talk about what it's like to live with cystic fibrosis. The adorable six year old is helping to raise awareness about the lung disease, which is currently incurable. Video courtesy of WCBD-TV.

Category: 
Rare Disease of Interest: 
Cystic Fibrosis
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Janice Dean Speaks on Living with Multiple Sclerosis

Janice Dean talked about her condition on Fox & Friends this morning.

Category: 
Rare Disease of Interest: 
Multiple Sclerosis
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Von Willebrands Disease

This is a video clip from WHOI TV on the blood disorder Von Willebrand's Disease, which often goes undiagnosed.

Category: 
Rare Disease of Interest: 
von Willebrand Disease
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Story on Ben, Sanfilippo Syndrome

TV news report on Ben, Sanfilippo Syndrome

Category: 
Rare Disease of Interest: 
Sanfilippo A Syndrome
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Eliza's Wish

A Channel 4 news story about Eliza, MLD and the Make-A-Wish foundation.

Category: 
Rare Disease of Interest: 
Metachromatic Leukodystrophy
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MLB Player Draws Attention To Rare Eye Disease

Spring training is weeks away, but Derrek Lee is already going to bat for his 4-year-old daughter, Jada. She has a rare eye condition called Leber's Congenital Amaurosis.

Category: 
Rare Disease of Interest: 
Leber Congenital Amaurosis
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Bill Gerba, MD -- Mystery Diagnosis -- Kawasaki's Disease

Dr. Gerba, from MDs4kids Medical, stars in this clip from Discovery Channel's "Mystery Diagnosis"

Category: 
Rare Disease of Interest: 
Kawasaki Syndrome
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Shana Martin: Channel 15 Huntington's Disease Profile

Huntington's related profile from Channel 15

Category: 
Rare Disease of Interest: 
Huntington's Disease
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Parrish Family Walk for Freidriech's Ataxia

Jim and Sandy Parrish of New Philadelphia tell us about their 5th annual Walk-A-Thon for Friedreich's Ataxia. Their daughter has F.A., a genetic muscular disease.

Category: 
Rare Disease of Interest: 
Friedreich's Ataxia

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