Coping Strategies
Clara's Cause: A Ride for Vision
Clara's Cause is a fund raiser to benefit the Foundation for Retinal Research (FRR). Clara Johansen has a condition called Leber's Congenital Amaurosis. This condition leads to visual impairment at an early age. Clara was diagnosed with this disorder at 8 months of age. She is now five and much progress has been made in understanding what causes LCA. Our goal is to raise funds and bring awareness so Clara and her friends may someday see a bright future.
Category:
Rare Disease of Interest:
Leber Congenital Amaurosis
Be my sunshine, help raise awarenes for Fanconi Anemia
Papa Bear singing "You are my sunshine"......please be our sunshine and help fund research for the fatal disease he has known as Fanconi Anemia. Nicholas is in bone marrow failure and transfusion dependent. Please donate by going to www.fanconi.org
Thank you from the depths of our hearts!
Category:
Rare Disease of Interest:
Fanconi Anemia Type C
A.L.S./Lou Gehrig's Disease: A Family's Story
A short documentary that I shot on Thanksgiving 2008. It is about how my family handled my father's stages of A.L.S./Lou Gehrig's Disease, and how they are coping now over 2 years after his passing. Unfortunately the sound quality was very poor during the interviews, but I did the best with what I had. Comments appreciated.
Category:
Rare Disease of Interest:
Amyotrophic Lateral Sclerosis
summer update.wmv
hi everyone laying the groundwork twards my liberation treatment.
Category:
Rare Disease of Interest:
Multiple Sclerosis
My Fight Against Kidney Cancer - Pat's Story - Apr 10, 2010
Pat was diagnosed with kidney cancer in November 2006 and had a nephrectomy. A few months later she was diagnosed with metastatic disease and started sunitinib. She currently has no evidence of disease.
Pat is a volunteer with Kidney Cancer Canada.
Category:
Rare Disease of Interest:
Renal Cell Carcinoma
Primary-Progressive Multiple Sclerosis: Perspectives on Moving Forward Part 4 - National MS Society
MS Learn Online is the National MS Society's online educational webcast series. This video features part four of a six-part series that profiles four people with primary-progressive MS and tips for managing the disease.
Category:
Rare Disease of Interest:
Multiple Sclerosis
