Coping Strategies

"Minor minor stroke"

My cousin suffered stroke ten years ago. It's a good thing that when it was happening, they happen to pass by the very front gate of the hospital. So, it was only seconds that they got him to the E.R. If he was taken to the hospital a little longer, it could have been devastating. That's why I called it a "minor minor" stroke.

Today, he is improving and he is even joining running events like marathon events here in our place.

Laura Hunter

More On: 
More On: 
More On: 
More On: 
Rare Disease of Interest: 
Stroke

Karyn Danielian keeps the faith

On the surface, the newsy tidbit from newly opened Shining Rock Golf Club appeared little more than a delicious twist of fate.

On May 1, Karyn Danielian, the wife of the club’s first head professional, Lee Danielian, registered the Northbridge layout’s first hole-in-one - and the third of her career - acing the uphill, 147-yard, par-3 15th with a 9-wood.

The story, however, is really much more than a serendipitous twist of fate. It has more to do with a twist of faith - all kinds of faith, including faith in one’s self, in the medical profession and in the support of a loving family.

Rare Disease of Interest: 
Amyotrophic Lateral Sclerosis
Multiple Sclerosis

Service dog gives Island Heights girl freedom

Apparently, no one told Emily that dogs are supposed to be man's best friend.

As the 11-year-old led her dog Sadie around the room, her beaming grin was the biggest hint that the fluffy white Labradoodle was more than a service dog; she was a friend.

Although Sadie is the family pet for Emily Dragos, she was purchased with the intention of being trained to help the young girl, who suffers from an unknown genetic syndrome that brings a plethora of health problems, affecting mobility and socialization.

Rare Disease of Interest: 
All Diseases

Family of 16 meets new home

Rick and Heather Ingle and their large family returned home Wednesday evening to a much different house than the one they were living in a year ago.

The family, which now numbers 16, celebrated the completion of the makeover project called Home Sweet New Home. They were joined by many of the volunteers who expanded the living space, increased the number of bedrooms from four to nine, made the home wheelchair-accessible and built a therapy room for the Ingle children with special needs.

More On: 
More On: 
More On: 
More On: 
Rare Disease of Interest: 
X Linked Retinoschisis

Woman Makes New Life After "Miracle" Transplant

Kristin Molini Survived Five-Organ Transplant; Celebrates One-Year Mark with "Rebirthday"

Kristin Molini had prepared herself to die.

The 22-year-old was diagnosed with a rare medical condition, intestinal dysmotility, a disease that paralyzed her digestive organs and left her jaundiced and extremely frail.

She reached a point where she weighed only 74 pounds and was living off IV nutrition and pain killers.

"That was my life," she said. " ... I was almost ready, knowing that I was gonna go."

Rare Disease of Interest: 
All Diseases

Covenant nurse has cystic fibrosis, but lives a regular life

When babies aren't gaining weight or have pneumonia, their parents don't usually think of a rare genetic disorder.
For one in every 3,500 white infants, though, these symptoms might signal cystic fibrosis, an inherited disorder that makes mucus in the body become thick and sticky.

A Lubbock cystic fibrosis awareness walk is set for 8:30 a.m. May 15 at Lubbock Christian University, 5601 19th St.

Rare Disease of Interest: 
Cystic Fibrosis

As bride battles ALS, Adelphi couple to marry after 16 years

Tonya Sanders, 40, of Adelphi enjoyed a relatively normal life until about four years ago, when she began struggling with coordination and falling down for seemingly no reason.

After visits to several doctors, Sanders was diagnosed in April 2007 with amyotrophic lateral sclerosis, often called Lou Gehrig's disease. She was told she likely had two to five years to live with the fatal neurological disease, which progressively damages the brain and takes away one's motor skills.

Rare Disease of Interest: 
Amyotrophic Lateral Sclerosis

Life changes quickly

Though he's been an admitted patient undergoing tests and getting chemotherapy treaments at Huntsville Hospital for the past 27 days, Robert "Buddy" Phillips was in good spirits Thursday afternoon.

"I'm doing pretty good, as good as can be expected," Phillips said. "My doctor (Dr. Jeremy Hon in Huntsville) told me he admired me about how I'm keeping my spirits up.

"He said he's never had a patient take chemo without getting sick, losing weight or getting down on themselves," Phillips added.

The calls, messages and visits are a big help.

Rare Disease of Interest: 
X Linked Retinoschisis

Wells supports BHS grad David Cupp’s young son

If you follow Hoosier girls basketball, chances are you’ve seen a Bluffton High School grad in the news during the last six years — and once again this month.

If not, there’s still a chance you might have seen pictures of this 31-year-old Tiger alumnus — along with his wife and son — if you’ve been in the Superior Court Clerk’s Office on the third floor at the Wells County Courthouse, as his mom Lorraine Mettler works there and is known for displaying pictures.

Rare Disease of Interest: 
Infantile Spasms

Time, medication help man live with deadly Wilson's disease

By Sam McManis

The insidious voice in his head, the one that occasionally would compel him to dark thoughts and deeds, echoed again as W. Mark Dendy sat in his car, idling at an Elk Grove rail crossing.

Just step on the gas and let the onrushing freight train end it all. End all the pain, physical and psychic, of Wilson's disease, a rare genetic disorder in which copper builds to toxic levels and can affect everything from liver function to motor control to mental health.

Just do it, Mark.

More On: 
Rare Disease of Interest: 
Wilson's Disease

1 of 2

Syndicate content